NCI CAP-IT Patient Advocates

Jenny Ahlstrom
Nominated by MGUS U54
Founder/CEO of HealthTree Foundation; a multiple myeloma patient
HealthTree Foundation is a global nonprofit patient advocacy organization dedicated to improving outcomes for individuals affected by blood cancers through patient education, community support, research collaboration, and data-driven innovation. Founded by myeloma patient advocate Jenny Ahlstrom, HealthTree connects patients, caregivers, researchers, and clinicians through educational programs, support communities, research initiatives, and technology platforms designed to accelerate discoveries and improve patient care.
Robin Dubin
Nominated by CRI U54
Executive Director/Co-Founder of AliveandKick’n
AliveAndKickn is a nonprofit patient advocacy organization dedicated to improving the lives of individuals and families affected by Lynch syndrome, the most common inherited colorectal cancer syndrome. Through patient support, education, awareness, screening advocacy, and research initiatives such as the HEROIC Registry, AliveAndKickn works to empower patients, promote early detection, and advance research on hereditary cancers and precision prevention.
Erica Kirschner
LFS Association, nominated by FCCC U54
Board Secretary of LFS Association; an Li-Fraumeni syndrome patient
The Li-Fraumeni Syndrome Association (LFSA) is an international patient advocacy organization dedicated to supporting individuals and families affected by Li-Fraumeni syndrome (LFS), a rare hereditary cancer predisposition syndrome associated with TP53 mutations. LFSA provides education, advocacy, patient support, and community resources, while also fostering collaboration among patients, researchers, clinicians, and caregivers to advance LFS research, awareness, early detection, and optimal care for the global LFS community.